Tuesday, January 24, 2006

Heart disease and privacy juxtaposed

I saw the word juxtapose the other day and I've heard it before and knew (at least knew-ish) what it meant and I swear I've used it in a conversation about a party that had it's fair share of pikeys and snobs. Dictionaries and the like define it as "place side by side" with some others going so far to say "especially for comparison or contrast".

So did I choose the write wording for the title when you consider a recent article at the TimesOnline?
It explains the problems of data privacy, not in the scary "ID stolen" light of recent news articles but how it hampers the medical research of heart disease. Scientists and medical researchers are prevented from having access to the information by over-zealous police and council red-tape. The data protection act, long as it is, does include a specific clause or exemption relating to "necessary and proportionate” medical research.

I wouldn't want just anyone to be able to access my personal medical details but what if the legitamate life saving research group wanted to search the now online database for trends in medication use and heart disease? I'm sure they wont need every detail of my medical record, the wonders of online databases allows you to search and 'pull out' only neccessary cross related fields, they don't need to know if someone had an AIDS test or considered suicide and so it wouldn't be included in the search for "medication" "heart problem" "male" "20-40".

I carry a donor card, maybe we should have a datadonor card. "I give my permission for my medical data to be searched and used for medical research by government licenced and independantly regulated medical bodies"

Privacy is great but so is saving people from getting heart disease.

Did I use the word correctly?

Links:
BBC health page
www.americanheart.org
www.bhf.org.uk